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Policies

Policy Regarding Intellectual Property On This Web site

The Cystic Fibrosis Patient Assistance Foundation (CFPAF) respects the Intellectual Property rights of others and requires those that visit our website, use our system for Internet access and e-mail, or obtain other educational or fund-raising information from us to do the same. The CFPAF may, in appropriate circumstances and at its sole discretion, remove or disable access to material on its web site and its e-mail systems that infringes upon its Intellectual Property rights or the rights of others. The CFPAF also may, at its discretion, remove or disable links or references to an on-line location that contains infringing material or infringing activity.

All information and content, including any software available through the Site, ("Content") is protected by copyright and/or trademark and is owned as Intellectual Property of the owner. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any Content available on or through the Site for commercial or public purposes.

Policy Regarding Copyright Materials of Others on this Web site

The CFPAF respects the copyrights of others and does not knowingly infringe upon these rights. However, if you believe that your work has been used on our web site in any manner that constitutes copyright infringement, please notify CFPAF's Intellectual Property agent by written notice. The notice should include the following information:

  • an electronic or physical signature of a person authorized to act on behalf of the owner of the copyright allegedly infringed;
    a description of the copyrighted work you claim has been infringed, including a copy of the copyrighted work or the Web page address where the copyrighted work may be found;
  • identification of the location on our web site of the material you claim has been infringed, or the link or reference to another web site that contains the material you claim has been infringed;
  • your name, address, telephone number and e-mail address;
  • a statement by you that you have a good faith belief that the disputed use of the material at issue is not authorized by the copyright owner, the agent of the copyright owner or the law; and
  • a statement by you, under penalty of perjury, that the information in this notification is accurate and that you are the copyright owner of the material allegedly infringed or authorized to act on the copyright owner's behalf.
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Policy Regarding Use of CFPAF Trademarks

The trademarks, logos, and service marks ("Marks") displayed on this web site, and related web sites belonging to the Cystic Fibrosis Patient Assistance Foundation are registered trademarks of the Cystic Fibrosis Patient Assistance Foundation, are the property of the Cystic Fibrosis Patient Assistance Foundation, and are protected by U.S. and international trademark laws. Their uses are restricted to those programs and events sponsored by the CFPAF, and CFPAF trademarks may not be used for personal financial gain. Use of the Marks is prohibited without the express written consent of the Cystic Fibrosis Patient Assistance Foundation except as permitted by applicable laws. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of the Cystic Fibrosis Patient Assistance Foundation.

At times, the CFPAF, in consultation with legal counsel, may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of the CFPAF. Solely at the discretion of the CFPAF, limited permission for use of CFPAF's Marks may be granted for those projects which provide a substantial benefit to the CFPAF or the cystic fibrosis community in general. For consideration, please submit, in writing, a letter of intent, which details how the CFPAF's Marks will be used, the length of time they will be used, and the benefit of the project to the CFPAF or the cystic fibrosis community to the mailing address below at least 60 days prior to launch. Letters of intent may also be sent to:

Cystic Fibrosis Patient Assistance Foundation
6931 Arlington Road, 2nd Floor
Bethesda, MD 20814