Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child’s cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

The Cystic Fibrosis Legal Information Hotline provides free information about the laws that protect the rights of individuals with cystic fibrosis (CF). It serves as a resource for Cystic Fibrosis Care Centers, individuals with cystic fibrosis, and their families. Information is available regarding:

• Obtaining health insurance
• Access to health insurance under the Health Insurance Portability and Accountability Act (HIPAA)
• Extending health insurance coverage under COBRA
• Insurance coverage issues
• Social Security Disability Insurance benefits
• Supplemental Security Income (SSI) benefits
• Medicare and Medicaid coverage
• Employment issues for people with cystic fibrosis, including protections under the Americans with Disabilities Act (ADA)
• School laws to assist children with cystic fibrosis in public elementary and secondary schools through the Individuals with Disabilities Education Act (IDEA)
• Protections for students in elementary school through college and beyond under the Rehabilitation Act of 1973, Section 504
• Unpaid time off from work under the Family Medical Leave Act (FMLA)

The Cystic Fibrosis Legal Information Hotline is an information resource only. The Hotline does not provide legal representation for callers. All calls are confidential.

The Cystic Fibrosis Legal Information Hotline is administered by Beth Sufian. An attorney and adult with cystic fibrosis, Ms. Sufian has been an advocate for individuals with cystic fibrosis for more than 15 years. Her professional and personal experiences have instilled in her a unique understanding of the law and the importance of being able to advocate for one’s self or family member.

The Cystic Fibrosis Foundation is proud to sponsor the Cystic Fibrosis Legal Information Hotline through a grant from Novartis Pharmaceuticals Corporation.

To contact the hotline, call (800) 622-0385 or send an e-mail to CFLegal@cff.org.